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Kentucky Self-Advocates For Freedom, Inc. PO Box 4004, Winchester, Kentucky 40392-4004 ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ KY-SPIN, Inc. is pleased to host this Self-Advocacy page for Kentucky Self-Advocates for Freedom, Inc. (KYSAFF). Kentucky Self-Advocates for Freedom is a newly formed state-wide non-profit organization led by and for people with developmental disabilities in the Commonwealth of Kentucky. The mission of Kentucky Self-Advocates for Freedom is:
“Kentucky Self-Advocates
for Freedom is a statewide organization directed by The goals of Kentucky Self-Advocates for Freedom are: A. Self-Advocates speaking up for themselves and to teach, coach and support other self-advocates to speak up for themselves; B. Self-Advocates knowing and exercising their rights; C. Educate people to gain a better understanding of self-advocacy and why self-advocacy is important; D. Informing and educating the general public about rights, needs and issues regarding people with developmental disabilities to live, work and be included in the community; E. Informing and educating lawmakers and public policy makers regarding the needs of people with developmental disabilities; F. Involvement in decision making forums regarding policies that impact people with developmental disabilities; and G. Advocating for funding for services and supports on behalf of people with developmental disabilities Kentucky Self-Advocates for Freedom Officers: Jim Chesser, President Elvis Smallwood, Vice President Cathy Jo Edwards, Secretary Reba McDonald, Treasurer Self-advocates who have a developmental disability and are interested and committed to self-advocacy and willing to work on the development of a statewide organization, work on the establishment of a local chapter in your area or getting involved in already established local chapters are encouraged to participate. For people interested in the state-wide organization contact: Vicki Cooper, vcooper4@juno.com, 859-273-1242 Cathy Jo Edwards, Secretary: 606-474-2596 Or Trudy Fletcher, Tfletch100@aol.com, 585-230-0313 or Jeff Keilson, jakeilson@aol.com, 781-910-7216 Local Chapters of Kentucky Self-Advocates For Freedom Several areas within Kentucky have already established local chapters of Kentucky Self-Advocates For Freedom, Inc. Many more areas are in the process of developing local chapters. For local chapter information contact:
For areas not mentioned, please contact: Vicki Cooper, vcooper4@juno.com, 859-273-1242; Trudy Fletcher TFletch100@aol.com, 585-230-0313; or Jeff
Keilson,
JAKeilson@aol.com, 781-910-7216 Self-Advocacy...What is it? * A civil rights movement for every person to have control over one’s life so people with disabilities are treated the same as everyone else. * Beliefs and Values · Being a person first · Being able to make our own decisions · Believing in my value as a person · Having other people believe in you as a person What would you do as a Self-Advocate? · Know your rights · Speak up for yourself · Express your feelings · Solve problems, get things done · Make choices and make your own decisions · Decide how support is given · Have influence over your own life
· Help each other to express your feelings and · Take control over your life · Take part in things that effect your own life · Be allowed to make your own mistakes · Form groups What do Groups do? · Help people get support from each other
· Bring people together to share ideas and gain · Learn from friends and support each other · Help people be listened to · Make it easier to make changes · Influence decisions that effect people’s lives
· Meet, have fun and make friends People participating in Kentucky Self-Advocates for Freedom must meet the criteria for having a developmental disability. Definition of Developmental Disability:
"DEVELOPMENTAL DISABILITY, (A) IN GENERAL. The term "developmental disability"
means a severe, chronic disability of an individual that (i) is attributable
to a mental or physical impairment or combination of mental or physical
impairments; (ii) in manifested before the individual attains age 22; (iii) is
likely to continue indefinitely; (iv) results in substantial functional
limitations in 3 or more of the following areas of major life activity: (I)
Self-care. (II) Receptive and expressive language. (III) Learning. (IV)
Mobility. (V) Self-direction. (VI) Capacity for independent living. (VII)
Economic self-sufficiency; and (v) reflects the individual's need for a
combination and sequence of special, interdisciplinary or generic services,
individualized supports, or other forms of assistance that are lifelong or
extended duration and are individually planned and coordinated. (B) INFANTS
AND YOUNG CHILDREN. An individual from birth to age 9, inclusive, who has a
substantial developmental delay or specific congenital or acquired condition,
may be considered to have a developmental disability without meeting 3 or more
of the criteria described in clauses (I) through (v) subparagraph (A) if the
individual, without services and supports, has a high probability of meeting
those criteria later in life." Click Here to fill out the Self-Advocacy Interest Survey Online
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