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Kentucky - Special Parent
Involvement Network, Inc.

 

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AIDS
Alcohol & Other Drug Abuse Literacy
Americans with Disabilities Act (ADA) Medical/Health Disorders
Assistive Technology Mental Health
Blindness/Visual Impairments Nutrition
Burns Physical Disabilities
Cancer Post Secondary
Child Abuse Rare Syndromes
Communications Disorders Recreation
Craniofacial Syndromes Rehabilitation
Cultural Diversity Respiratory Disorders
Deafness/Hearing Impairments Respite Care
Disability Awareness Rural
Disability Organizations Specific Disabilities
Education State Agencies
Elementary Supplemental Security Income (SSI)
Employment Teen
Financial Counseling Trauma
Health Issues US Department of Education
Hospice Zero - Three: Early Childhood
Information Services
 

AIDS

CDC National Prevention Information Network
www.cdcnpin.org

CDC National STD and AIDS Hotline
http://www.cdc.gov

Hemophilia and AIDS/HIV Network for
Dissemination of Information
www.hemophilia.org

HIV/AIDS Treatment Information Service
www.aidsinfo.nih.gov 

National Pediatric and Family HIV Resource Center
www.thebody.com
 

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ALCOHOL AND OTHER DRUG ABUSE

Alcoholics Anonymous World Services Inc.
www.aa.org

Families Anonymous
www.familiesanonymous.org
E-mail: famanon@familiesanonymous.org    

National Institute on Drug Abuse (NIDA)
http://drugabuse.gov/nidahome.html


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AMERICANS WITH DISABILITIES ACT (ADA)

ADA in Action
www.adata.org
 
Disability and Business Technical Assistance Centers
www.adata.org

Job Accommodation Network
www.jan.wvu.edu

SOUTHEAST DBTAC
Your Regional Resource Center on the ADA and Accessible IT in Education
490 Tenth Street  *  Atlanta, GA  30318
1-800-949-4232 (v/tty)
404-385-0636 (v/tty)
404-385-0641 (fax)
sedbtacproject@catea.org
www.sedbtac.org

U.S. Architectural and Transportation Barriers
Compliance Board -- Access Board
www.access-board.gov

U.S. Department of Housing and Urban
Development -- HUD User
www.huduser.org
 

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ASSISTIVE TECHNOLOGY/DEVICES
 
AbleNet
www.ablenetinc.com

Alliance for Technology Access
www.ataccess.org

IBM Special Needs Systems
www.ibm.com/able

TECHKNOWLEDGE
www.catea.org
 

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BLINDNESS/VISUAL IMPAIRMENTS

American Council of the Blind
www.acb.org

American Foundation for the Blind
www.afb.org

American Printing House for the Blind
www.aph.org

Blind Children's Center
www.blindchildrenscenter.org

Lighthouse National Center for Vision and
Child Development
www.lighthouse.org

National Library for the Blind and
Physically Handicapped
www.loc.gov

Prevent Blindness America
www.preventblindness.org

Recording for the Blind
www.rfbd.org

The Foundation Fighting Blindness
www.blindness.org
 


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BURNS

Phoenix Society for Burn Survivors
www.phoenix-society.org
 

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CANCER

American Cancer Society
www.cancer.org

Cancer Information and Counseling Line
www.amc.org

Candlelighters Childhood Cancer Foundation
www.candlelighters.org

National Cancer Information Service
www.cancer.gov
 

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CHILD ABUSE

Prevent Child Abuse America
www.pcaky.org
 

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CHILD CARE

Kentucky's Network of Child Care Resource and Referral Agencies
http://www.kentuckypartnership.org/General/About/ccrr.aspx

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COMMUNICATION DISORDERS

Communication Aid Manufacturers'
Association
www.aacproducts.org

National Center for Stuttering
www.stuttering.com

National Stuttering Association
www.westutter.org
 


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CRANIOFACIAL SYNDROMES

Children's Craniofacial Association
www.ccakids.com

FACES -- National Craniofacial Association
www.faces-cranio.org
 

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CULTURAL DIVERSITY

Kentucky (CPRC)
FIND of Louisville
 www.councilonmr.org   

Office of Minority Health Resource Center (OMH-RC)
www.omhrc.gov  

Culturally and Linguistically Appropriate Services (CLAS)
Early Childhood Research Institute
University of Illinois at Urbana-Champaign
http://www.clas.uiuc.edu/

Scholarships for Hispanics      
                                                                                      
The National Hispanic Press Foundation
http://www.nahp.org/

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DEAFNESS/HEARING IMPAIRMENTS

American Society for Deaf Children
www.deafchildren.org

Better Hearing Institute
www.betterhearing.org

Deafness Research Foundation
www.drf.org

Hear Now
www.leisurelan.com

John Tracy Clinic
www.johntracyclinic.org

National Cued Speech Association
www.cuedspeech.com 

National Information Clearinghouse
on Children Who are Deaf-Blind (DB-LINK)
www.dblink.org

National Institute on Deafness and Other
Communication Disorders Clearinghouse
www.nidcd.nih.gov
 

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DISABILITY AWARENESS

Kids on the Block
www.kotb.com
 

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DISABILITY ORGANIZATIONS & OTHER DISABILITY RELATED RESOURCES

Kentucky Yellow Pages for Kids with Disabilities (Wrightslaw)

Attention Deficit Disorder
To identify an ADD group in your state or locality, contact either:                              
*
 Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)
    www.chadd.org                                                                                                      
National Attention Deficit Disorder Association (ADDA)
    www.add.org

Autism
To identify an autism group in your state, contact:
Autism Society of America
www.autism-society.org

Center for the Study of Autism

Brain Injury:
www.braincenter.org

Brain Injury Association of America                                                                          
http://www.biausa.org/Pages/home.html

 Cerebral Palsy, United
http://www.ucp.org/

The Center for an Accessible Society
 www.accessiblesociety.org                                                                            

National Down Syndrome Society
http://www.ndss.org/ 

DisabilityInfo.gov The New Freedom Initiative's Online Resource for American's with Disabilities.

 

DISABILITY RIGHTS EDUCATION AND DEFENSE FUND
www.dredf.org

 

The Interdisciplinary Council on Developmental & Learning Disorders 

http://www.icdl.com

Epilepsy Foundation

http://www.epilepsyfoundation.org/

Hearing Loss Web is dedicated to people who have hearing loss, but are not members of the traditional Deaf community. This includes people who consider themselves to be hearing impaired, hard of hearing, late deafened, and oral deaf. We provide information on events, issues, medical topics, resources, and technology related to hearing loss. E-mail: larry@hearinglossweb.com

National Organization on Fetal Alcohol Syndrome (NOFAS)
http://www.nofas.org

Learning Disabilities Association of America
http://www.ldanatl.org/

LDA (Learning Disabilities Association) of Kentucky
http://www.ldaofky.org

The National Center for Learning Disabilities
http://www.ncld.org

Coordinated Campaign for Learning Disabilities
http://www.ldonline.org

 

NeedyMeds is the place to learn about patient assistance programs and other programs designed to help those who can't afford their medicines.

The Council On Developmental Disabilities
www.councilondd.org
 

Mental Health
www.mhaky.org

NAMI Kentucky
http://ky.nami.org

Children with Emotional, Behavioral, and/or Mental Health challenges
KY Partnership for Families and Children
http://www.kypartnership.net/

Family Voices National Office 
www.familyvoices.org

The National Collaborative on Workforce and Disability for Youth (NCWD/Youth)

Spina Bifida
www.sbak.org

Visual Impairments
www.afb.org

NICHCY (The National Information Center for Children and Youth with 

Disabilities)
www.nichcy.org

 

Council for Exceptional Children
http://www.cec.sped.org

 

The Center for An Accessible Society

www.accessiblesociety.org

  

ERIC (Educational Resources Information Center)

http://www.eric.ed.gov/

 

Disability Radio Worldwide

http://www.independentliving.org/radio/index.html

 

Disability Resources Monthly (DRM)

Guide to Disability Resources on the Internet

http://www.disabilityresources.org/

  

National Center for the Dissemination of Disability Research(NCDDR)
Southwest Educational Development Laboratory
http://www.ncddr.org

 

Consortium for Citizens with Disabilities

http://www.c-c-d.org/

 

National Council on Disability

http://www.ncd.gov/

 

Parenting Special Needs

http://www.specialchildren.about.com

 

Rehabilitation Research & Training Center on Workplace Supports

http://www.worksupport.com

   

Inclusion Research Institute
www.inclusionresearch.org

 

Shadow Buddies Foundation has published a resource book that educates children, K-6, about their peers with disabilities, illnesses, and medical conditions intended to bring about increased understanding and acceptance.
Shadow Buddies Foundation
www.shadowbuddies.com
 

Project Participate
University of Colorado Health Science Center
www.projectparticipate.org


 

National Center on Workforce and Disability/Adult
Institute for Community Inclusion
 www.onestops.info

 

The Sibling Support Project

http://www.thearc.org/siblingsupport/

The Kidz Club is a special and unique place for your medically fragile child.  Our mission is to provide the safest and most inclusive day treatment to infants and children.   Under your pediatrician’s order, your child will receive ongoing medical treatment, assessment/evaluation and supervision by registered and licensed nurses and others.  In coordination with a quality daycare center, your child will be included in a safe, educational and loving childcare experience that allows him or her to socialize and grow with all children.  This early integration speeds up your child’s progress educationally, socially and developmentally.  Your child will not only receive high quality medical care in an educationally enriched environment, he or she will also have FUN!  Medicaid, Passport and Commercial Insurance accepted.                             
Louisville, KY  www.thekidzclub.cc.

HUD (U.S. Department of Housing and Urban Development)-approved housing counseling agencies! HUD funds housing counseling agencies throughout the country who can give you advice on buying a home, renting, defaults, foreclosures, credit issues and reverse mortgages. Just contact the agency nearest to you at: HUD Approved Housing Counseling Agencies in KENTUCKY  , or call (800) 569-4287. Homeowners with problems that could result in default of their mortgage or foreclosure on their property need to contact a HUD-approved housing counseling agency immediately.

National Association for Child Development
http://www.nacd.org/

 

National Clearinghouse for Professions in Special Education (NCPSE)

http://www.special-ed-careers.org/index.html

 

The National Special Needs Network, Inc.

http://www.nsnn.com/Default.htm

 

Office of Family Resource and Youth Services Centers (FRYSC)

http://chfs.ky.gov/dfrcvs/frysc/
FRYSC Regional Information
http://chfs.ky.gov/dfrcvs/frysc/Regions.htm

 

Family Education Network

http://fen.com/

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EDUCATION

American Association for Vocational Instructional Materials
www.aavim.com

American School Counselor Association
www.schoolcounselor.org

Association for Childhood Education International
www.acei.org

Federal Resource Center for Special Education

www.dssc.org/frc

KENTUCKY DEPARTMENT OF EDUCATION:
SPECIAL EDUCATION                                                                                        
Web: www.kde.state.ky.us

NICHCY (The National Information Center
for Children and Youth with Disabilities)
www.nichcy.org

 

Office of Special Education & Rehabilitative Services (OSER)

http://www2.ed.gov/about/offices/list/osers/index.html

Office of Special Education Programs (OSEP)

http://www.ed.gov/about/offices/list/osers/osep/index.html?src=mr

 

Urban Special Education Leadership Collaborative
www.urbancollaborative.org

 

U.S. Department of Education

www.ed.gov

 

U.S. Department of Education, Office for Civil Rights
Web:
http://www.ed.gov/about/offices/list/ocr/index.html

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ELEMENTARY

KENTUCKY DEPARTMENT OF EDUCATION:
SPECIAL EDUCATION                                                                                              
 www.kde.state.ky.us

TECHNOLOGY-RELATED ASSISTANCE                                                                 
 
Kentucky Assistive Technology Service (KATS) Network
www.katsnet.org

KY COLLABORATIVE CENTER FOR

LITERACY DEVELOPMENT

www.kentuckyliteracy.org

 

Social Security Administration

www.ssa.gov

 

PROGRAMS FOR CHILDREN AND YOUTH
WHO ARE DEAF OR HARD OF HEARING                                                              
www.kcdhh.org

 

 The Kentucky School for the Blind

(ages preschool through grade 12)

http://www.ksb.k12.ky.us/

 

Kentucky Cares

http://kycares.ky.gov/

 

NICHCY (The National Information Center
for Children and Youth with Disabilities)
www.nichcy.org

 

Office of Special Education & Rehabilitative Services (OSER)

http://www2.ed.gov/about/offices/list/osers/index.html

Office of Special Education Programs (OSEP)

http://www.ed.gov/about/offices/list/osers/osep/index.html?src=mr

 

ERIC (Clearinghouse on Disabilities and Gifted Education

http://ericec.org/

 

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EMPLOYMENT

Equal Employment Opportunity Commission
www.eeoc.gov

Job Accommodation Network
http://janweb.icdi.wvu.edu/ 

Kentucky Office of Vocational Rehabilitation
http://ovr.ky.gov/

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FINANCIAL COUNSELING

National Foundation for Consumer Credit
www.momentive.org
 

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HEALTH ISSUES

Commission for Children with Special Health Care Needs (CCSHCN) http://chfs.ky.gov/ccshcn/

Family to Family Health Information Center

National Organization for Rare Disorders (NORD)
http://www.rarediseases.org
E-mail Contact:orphan@rarediseases.org
Please note that we are unable to open unexpected e-mail attachments. If you must send us an attachment, please notify us first.
If you have questions related to providing care or accessing services for someone with a rare disease, write to: RN@rarediseases.org.
If you have a question related to genetic testing or the inheritance patterns of diseases, write to: genetic_counselor@rarediseases.org.                               

NeedyMeds is the place to learn about patient assistance programs and other programs designed to help those who can't afford their medicines.

MedMarket.com: medical products and services directory on the Internet.

Kentucky Yellow Pages for Kids with Disabilities (Wrightslaw)

National Resource Center for Special Needs Adoption/Spaulding 

for Children
http://www.spaulding.org

National Organization on Fetal Alcohol Syndrome (NOFAS)
http://www.nofas.org

Sillwee Wobbert picture book series
Children Understand and Accept More about their Health!
Dream Publishing Co.
www.sillweewobbert.com
 

Speech/Hearing/Language Concerns:
American Speech-Language-Hearing Association Helpline
http://www.asha.org/default.htm

Early Hearing Detection and Intervention:
National Center for Hearing Assessment and Management
http://www.infanthearing.org/

Shriners Hospitals for Children (ages 0-18)

http://www.shrinershospitalsforchildren.org/

 

Commision on the Deaf and Hard of Hearing

http://kcdhh.ky.gov/

 

The Kentucky School for the Deaf: Early

Childhood Program (ages 0-6)

http://www.ksd.k12.ky.us/

 

Visually Impaired Preschool Services

(ages birth through preschool)

http://www.vips.org/

  

 The Kentucky School for the Blind

(ages preschool through grade 12)

http://www.ksb.k12.ky.us/

 

SSI/Disabled Children’s Program (DCP)

http://www.ssa.gov/

 

U of L Child Evaluation Center

http://pediatrics.louisville.edu/load_division.php?division=div_child_eval

 

U of K - IHDI (Interdisciplinary Human Development Institute)

http://hdi.uky.edu/SF/Home.aspx 

 

Hospice of Kentucky

http://www.kah.org/

  

Kentucky Medicaid

http://chs.ky.gov/dms/

 

Social Security Administration

www.ssa.gov

 

Kentucky Children’s Health Insurance Program (KCHIP)

http://chs.ky.gov/kchip/

 

Center for Accessible Living:
http://www.calky.org/
 

Supported Living in Kentucky
University of Kentucky

http://dmhmrs.chr.state.ky.us/mr/supportedliving/

 Contacts (Directory page 10), Supports that can  be Requested , Description of  Supported Living , Submitting your  ApplicationApplication , Completing your  Application , Application Review  and Funding Process , Regulations , Eligibility for  Supported Living 

 

Supports for Community Living (SCL Waiver)

Field Staff and Locations (Directory),

Services, RegulationsFormsProviders

STATE MENTAL HEALTH AGENCY                                                                 
http://mhmr.chs.ky.gov/CMHC/

STATE MENTAL HEALTH REPRESENTATIVE
FOR CHILDREN & YOUTH 

http://mhmr.chs.ky.gov/mh/cysb/

STATE DEVELOPMENTAL DISABILITIES COUNCIL                                               
(Kentucky DD Council) / STATE MENTAL RETARDATION PROGRAM                                                           
http://mhmr.chs.ky.gov/MR/

STATE AGENCY FOR THE VISUALLY IMPAIRED                                            
http://blind.ky.gov/

Kentucky School for the Blind
http://www.ksb.k12.ky.us/

PROGRAMS FOR CHILDREN AND YOUTH
WHO ARE DEAF OR HARD OF HEARING                                                          
http://www.ksd.k12.ky.us/

AboutSmiles.org (promotes oral health)
http://www.AboutSmiles.org

American Academy of Pediatrics
http://www.aap.org

Association for the Care of Children's Health (ACCH)
http://www.eparent.com/resources/associations/childreshealthassoc.htm

HRSA's Maternal and Child Health programs
http://www.ask.hrsa.gov/MCH.cfm

National Association for Children's Hospitals & Related Institutions
http://www.childrenshospitals.net/

National Center for Education in Maternal and Child Health
http://www.ncemch.org

National Health Information Center
http://www.health.gov/nhic/

Training/Community Health:
     Bright Futures Project
     NCEMCH
    
http://www.brightfutures.org

     National Healthy Mothers/Healthy Babies Coalition
    
http://www.hmhb.org/    (Immunizations:
     http://www.hmhb.org/parent.html#immunization)

ARCH National Respite Network
http://www.archrespite.org/index.htm
National Respite Locator Service
http://www.respitelocator.org/locatorsearch/searchpage.htm
National Respite Coalition
http://www.archrespite.org/NRC.htm

National Sudden Infant Death Syndrome Resource Center
http://www.sidscenter.org/

National Perinatal Association
http://www.nationalperinatal.org

National Perinatal Information Center 
http://www.npic.org

NICHCY (The National Information Center
for Children and Youth with Disabilities)
www.nichcy.org

 

Office of Special Education & Rehabilitative Services

http://www.ed.gov/about/offices/list/osers/index.html

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HOSPICE

Children's Hospice International
www.chionline.org

HOSPICELINK
www.callforhelpinc.org
 

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INFORMATION SERVICES

ABLEDATA/National Rehabilitation
Information Clearinghouse
www.abledata.com

ACCESS ERIC
www.nal.usda.gov

Easter Seals--National Office
www.easterseals.com

ERIC Clearinghouse on Disabilities and
Gifted Education
www.eric.ed.gov

The Genetic Alliance
www.geneticalliance.org

National Information Center for Children
and Youth with Disabilities (NICHCY)
www.nichcy.org
 
ODPHP National Health Information Center
www.health.gov/nhic

Office of Minority Health Resource Center
www.omhrc.gov

Zero to Three/National Center for Infants,
Toddlers, and Families
 http://zerotothree.org/ 

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LAW RESOURCES

Office of Special Education & Rehabilitative Services

www.ed.gov/offices/OSERS/IDEA/index.html

 

IDEA Practices

Developed and maintained by the Educational Development Center

www.ideapractices.org

 

The Policymaker Partnership for Implementing IDEA

www.ideapolicy.org

 

The Families and Advocates Partnership for Education (FAPE) project

http://www.fape.org/

  

U.S. Department of Education, Office for Civil Rights
Web:
http://www.ed.gov/about/offices/list/ocr/index.html
 

KENTUCKY DEPARTMENT OF EDUCATION:
SPECIAL EDUCATION
Web: www.kde.state.ky.us
 

Pacer Center

www.pacer.org

 

PROTECTION AND ADVOCACY AGENCY

Website:  www.kypa.net

 

National Association of Protection & Advocacy Systems
http://www.napas.org/

 

REGIONAL ADA TECHNICAL ASSISTANCE AGENCY

Southeast Disability and Business Techical Assistance Center
United Cerebral Palsy Associations, Inc.,
Web: www.sedbtac.org

 

NICHCY (The National Information Center
for Children and Youth with Disabilities)

www.nichcy.org

 

Child Care Law Center
http://www.childcarelaw.com

 

Youth Law Center/Children's Legal Protection Center
http://www.childprotect.org

 

American Bar Association Center on Children & the Law
http://www.abanet.org/child/

Disability Rights Education and Defense Fund (DREDF)
http://www.dredf.org/

Pike Institute on Law and Disability
Boston University School of Law
http://www.bu.edu/pike/home.html

Wrightslaw: http://www.wrightslaw.com  

The National Special Needs Network, Inc.
http://www.nsnn.com/Default.htm

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LITERACY

Laubach Literacy
www.proliteracy.org
 

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MEDICAL/HEALTH DISORDERS

American Association of Kidney Patients
www.aakp.org

American Brain Tumor Association
www.abta.org

American Cancer Society
www.cancer.org

American Diabetes Association
www.diabetes.org

American Heart Association
www.americanheart.org

American Kidney Fund
www.akfinc.org

American Liver Foundation
www.liverfoundation.org

American Lung Association
www.lungusa.org

Aplastic Anemia & MDS International
Foundation
www.aamds.org

Asthma and Allergy Foundation of America
www.aafa.org

Chronic Fatigue and Immune Dysfunction
Syndrome Association
www.cfids.org

Crohn and Colitis Foundation of America
www.ccfa.org

Eating Disorders Awareness and Prevention
www.nationaleatingdisorders.org

Family Voices: A National Coalition Speaking for Children
with Special Health Care Needs
www.familyvoices.org

Federal Hill-Burton Free Hospital Care Program
www.hrsa.gov

Foundation for Ichthyosis and Related Skin Types
www.scalyskin.org

Leukemia and Lymphoma Society (formerly
the Leukemia Society of America)
www.leukemia.org

Lupus Foundation of America
www.lupus.org

National Brain Tumor Foundation
www.braintumor.org

National Heart, Lung, and Blood Institute Information Center
www.nhlbi.nih.gov

National Lymphedema Network
www.lymphnet.org

Shriners Hospital for Crippled Children
www.shrinersha.org

Sickle Cell Disease Association of
America
www.sicklecelldisease.org

United Ostomy Association
www.uoa.org

Vestibular Disorders Association
www.vestibular.org

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MENTAL HEALTH

National Alliance for the Mentally Ill
www.nami.org

National Mental Health Association
www.nmha.org

National Mental Health Consumer Self-Help
Clearinghouse
www.mhselfhelp.org

Research and Training Center on Family
Support and Children's Mental Health
www.rtc.pdx.edu

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NUTRITION

Beech-Nut Nutrition Hotline
www.beechnut.com

Gerber Parents Resource Center
www.gerber.com

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PHYSICAL DISABILITIES

Christopher Reeve Paralysis Foundation
www.christopherreeve.org

Human Growth Foundation
www.hgfound.org

Muscular Dystrophy Association
www.mdausa.org

National Library Services for the Blind
and Physically Handicapped
www.loc.gov/nls/ 

National Limb Loss Information Center
www.amputee-coalition.org

National Spinal Cord Injury
www.spinalcord.org

Pathways Awareness Foundation
www.pathwaysawareness.org

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POST SECONDARY

STATE DIVISION OF VOCATIONAL REHABILITATION
Department of Vocational Rehabilitation
http://www.ihdi.uky.edu/kyada/DVRinfo.htm

KY COLLABORATIVE CENTER FOR

LITERACY DEVELOPMENT

www.kentuckyliteracy.org

 

Center for Self-Determination
http://www.self-determination.com/

DIVISION OF SECONDARY VOCATIONAL EDUCATION                              
Special Vocational Programs
www.kde.state.ky.us

TECHNOLOGY-RELATED ASSISTANCE                                                                  
Kentucky Assistive Technology Service (KATS) Network
www.katsnet.org

Social Security Administration

www.ssa.gov

 

Kentucky Cares

http://kycares.ky.gov/ 

 

NICHCY (The National Information Center
for Children and Youth with Disabilities)
www.nichcy.org

 

Office of Special Education & Rehabilitative Services

www.ed.gov.offices/OSERS

 

Office of Special Education Programs

www.ed.gov/offices/OSERS/OSEP/index.html

 

ERIC (Clearinghouse on Disabilities and Gifted Education

http://ericec.org/

 

Rehabilitation Research & Training Center on Workplace Supports

http://www.worksupport.com

 

Research Information on Independent Living (RIIL)

http://www.lsi.ukans.edu/rtcil/apps/riil/search.asp

 

Independent Living: disability resources & services

http://www.independantliving.org

 

Center for Accessible Living:
http://www.calky.org/
 

Supported Living in Kentucky
University of Kentucky

http://dmhmrs.chr.state.ky.us/mr/supportedliving/

 Contacts (Directory page 10), Supports that can  be Requested , Description of  Supported Living , Submitting your  ApplicationApplication , Completing your  Application , Application Review  and Funding Process , Regulations , Eligibility for  Supported Living 

 

Supports for Community Living (SCL Waiver)

Field Staff and Locations (Directory),

Services, RegulationsFormsProviders

 

National Center on Workforce and Disability/Adult
Institute for Community Inclusion
UMass Boston
www.onestops.info

Search for  Career Colleges
http://www.search4careercolleges.com/default.asp

Free College Search and Scholarship Search
http://www.fastweb.com/

Scholarships for Hispanics       
                                                                                     
The National Hispanic Press Foundation
 www.nahponline.org

ENTRY POINT! is a program of the American Association for the Advancement of Science (AAAS) offering Outstanding Internship Opportunities for Students with Disabilities in Science, Engineering, Mathematics, Computer Science, and some fields of Business.                                                                      

Scholarships Available for Female Graduate Students With Disabilities  The Ethel Louise Armstrong Foundation was founded in 1994 to "Change the Face of Disability on the Planet." The foundation offers scholarships to women with disabilities who are currently pursuing graduate degrees.

 American Association of People with Disabilities

The Mitsubishi Electric America (MEA) Foundation is dedicated to helping young people with disabilities, through technology, to maximize their potential and fully participate in society.

NEC Foundation of America to Focus Exclusively on Technology for People with Disabilities The NEC Foundation of America has announced that, beginning this year, its sole focus will be on technology for people with disabilities.

HUD (U.S. Department of Housing and Urban Development)-approved housing counseling agencies! HUD funds housing counseling agencies throughout the country who can give you advice on buying a home, renting, defaults, foreclosures, credit issues and reverse mortgages. Just contact the agency nearest to you at: HUD Approved Housing Counseling Agencies in KENTUCKY  , or call (800) 569-4287. Homeowners with problems that could result in default of their mortgage or foreclosure on their property need to contact a HUD-approved housing counseling agency immediately.

GEDonline is the first continuing adult education website dedicated to helping you prepare online for the GED High School Equivalency Diploma Test.

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RARE SYNDROMES

The Genetic Alliance
www.geneticalliance.org

National Organization for Rare Disorders (NORD)
www.rarediseases.org

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RECREATION

Adventures in Movement for the
Handicapped, Inc.
www.aimsforthehandicapped.org

Magic Foundation
www.magicfoundation.org

North American Riding for the
Handicapped, Inc.
www.narha.org

Sunshine Foundation
www.sunshinefoundation.org

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REHABILITATION

ABLEDATA
www.abledata.com

Childrens Resource Center
http://crcjct.home.netcom.com/newpageone.html

National Clearinghouse of Rehabilitation
Training Materials
www.nchrtm.okstate.edu

Vocational Rehabilitation (http://ovr.ky.gov/index.htm):
         Staff Directory
         County Directory

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RESPIRATORY DISORDERS

National Jewish Center for Immunology and
Respiratory Medicine -- LUNGLINE
www.njc.org

National Heart, Lung and Blood
Institute Information Center
www.nhlbi.nih.gov

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RESPITE CARE

ARCH National Respite Network
http://www.archrespite.org/index.htm

National Respite Locator Service (Access to Respite Care & Help-by state)
http://www.respitelocator.org/locatorsearch/searchpage.htm

National Respite Coalition
http://www.archrespite.org/NRC.htm

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RURAL

Rural Institute on Disabilities (Montana Univ.
Affiliated Program)
www.ruralinstitute.umt.edu

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SPECIFIC DISABILITIES

American Association on Mental Retardation
www.aamr.org

Angelman Syndrome Foundation
www.angelman.org

Aplastic Anemia & MDS International
Foundation
www.aplastic.org

Autism Society of America
www.autism-society.org

Brain Injury Association
www.biausa.org

Children and Adults with Attention
Deficit Disorder (CHADD)
www.chadd.org

Cleft Palate Foundation
www.cleftline.org

Cooley's Anemia Foundation
www.thalassemia.org

Cornelia de Lange Syndrome Foundation
www.cdlsusa.org

Crohn's and Colitis Foundation America
www.ccfa.org

Cystic Fibrosis Foundation
www.cff.org

Epilepsy Foundation-National Office
www.epilepsyfoundation.org

Huntington's Disease Society of America
www.hdsa.org

International Dyslexia Association
(formerly the Orton Dyslexia Society)
www.interdys.org

International Rett Syndrome Association
www.rettsyndrome.org

Learning Disabilities Association of America
http://www.ldanatl.org/

LDA (Learning Disabilities Association) of Kentucky
http://www.ldaofky.org

Learning Disabilities: Schwab Learning
http://www.schwablearning.org/index.asp

The National Center for Learning Disabilities
http://www.ncld.org

Coordinated Campaign for Learning Disabilities
http://www.ldonline.org


Lyme Disease Foundation
www.lyme.org

Multiple Sclerosis Association of America
www.msaa.com

National Center for Learning Disabilities
www.ld.org

National Center for Stutttering
www.stuttering.com

National Down Syndrome Congress
www.ndscenter.org

National Down Syndrome Society
www.ndss.org

National Fragile X Foundation
www.nfxf.org

National Lymphedema Network
www.lymphnet.org

National Multiple Sclerosis Society
www.nmss.org

National Neurofibromatosis Foundation
www.nf.org

National Organization for Albinism and Hypopigmentation
www.albinism.org

National Organization on Fetal Alcohol Sydrome
www.nofas.org

National Reye's Syndrome Foundation
www.reyessyndrome.org

National Scoliosis Foundation
www.scoliosis.org

National Stuttering Association
www.nsastutter.org

National Tay-Sachs & Allied Diseases
Association, Inc.
www.ntsad.org

National Tuberous Sclerosis Association
www.tsalliance.org

Neurofibromatosis, Inc.
www.nfinc.org

Osteogenesis Imperfecta Foundation
www.oif.org

Prader-Willi Syndrome Association
www.pwsausa.org

Spina Bifida Associations of America
www.sbaa.org

Stuttering Foundation of America
www.stuttersfa.org

Support Organization for Trisomy 17, 13,
and Related Disorders
www.trisomy.org

Sudden Infant Death Syndrome Alliance
www.sidalliance.org

Tourette Syndrome Association
www.tsa-usa.org

Treacher Collins Foundation
www.treachercollinsfnd.org

United Cerebral Palsy Associations
www.ucp.org

United Leukodystrophy Foundation
www.ulf.org

United Scleroderma Foundation
www.sclerodema.org

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STATE AGENCIES/ORGANIZATIONS

KENTUCKY DEPARTMENT OF EDUCATION:
SPECIAL EDUCATION                                                                                        
Web: www.kde.state.ky.us

Office of Family Resource and Youth Services Centers (FRYSC)
http://cfc.state.ky.us/frysc/

The Council on
Mental Retardation
Web Site:  www.councilonmr.org                                                                                                                                                                                                 
Kentucky (CPRC)
FIND of Louisville
Web Site: www.councilonmr.org

"The KYBLN (Kentucky Business Leadership Network) is a business-led endeavor that assists employers in finding qualified job seekers with disabilities. If you are an employer or job seeker in Kentucky we welcome your participation."
Kentucky Business Leadership Network
Website: http://www.kybln.org

Kentucky Yellow Pages for Kids with Disabilities (Wrightslaw)

Social Security Administration                                                                                     
www.ssa.gov

Kentucky Medicaid

http://chs.ky.gov/dms/

DIVISION OF SECONDARY VOCATIONAL EDUCATION                                  
Web: www.kde.state.ky.us

KY COLLABORATIVE CENTER FOR LITERACY DEVELOPMENT

www.kentuckyliteracy.org

 

Center for Accessible Living:
http://www.calky.org/

Supported Living in Kentucky

http://dmhmrs.chr.state.ky.us/mr/supportedliving/

 Contacts (Directory page 10), Supports that can  be Requested , Description of  Supported Living , Submitting your  ApplicationApplication , Completing your  Application , Application Review  and Funding Process , Regulations , Eligibility for  Supported Living 

 

Supports for Community Living (SCL Waiver)

Field Staff and Locations (Directory),

Services, RegulationsFormsProviders

STATE MENTAL HEALTH AGENCY                                                                 
http://mhmr.chs.ky.gov/CMHC/

STATE MENTAL HEALTH REPRESENTATIVE
FOR CHILDREN AND YOUTH                                                                                    
 http://dmhmrs.chr.state.ky.us

STATE DEVELOPMENTAL DISABILITIES
COUNCIL (Kentucky DD Council) /
STATE MENTAL RETARDATION PROGRAM                                                           
http://mhmr.chs.ky.gov/MR/

PROTECTION AND ADVOCACY AGENCY                                                    
 www.kypa.net

PROGRAMS FOR CHILDREN WITH
SPECIAL HEALTH CARE NEEDS         
http://chs.ky.gov/commissionkids/

First Steps: Kentucky’s
Early intervention System (ages 0-3)
http://chs.ky.gov/commissionkids/firststeps/

STATE AGENCY FOR THE VISUALLY IMPAIRED
http://blind.ky.gov/

Kentucky School for the Blind
http://www.ksb.k12.ky.us/

PROGRAMS FOR CHILDREN AND YOUTH
WHO ARE DEAF OR HARD OF HEARING                                                              
http://www.kcdhh.org/

UNIVERSITY AFFILIATED PROGRAM                                                                   
www.ihdi.uky.edu

STATE EDUCATION AGENCY RURAL REPRESENTATIVE                          
www.kde.state.ky.us

REGIONAL ADA TECHNICAL ASSISTANCE AGENCY                            
Southeast Disability and Business Techical Assistance Center
United Cerebral Palsy Associations, Inc.,
www.sedbtac.org

PARENT-TO-PARENT:                                                                                                   
Parent Outreach: Parents Supporting Parents   www.councilonmr.org

Through the Looking Glass (TLG) The purpose of the National Parent-to-Parent Network at Through the Looking Glass is to connect parents, as well as those who are considering becoming parents, with others who may have shared similar experiences or faced common barriers as parents with disabilities. http://www.lookingglass.org/ 

PARENT TEACHER ASSOCIATION (PTA)                                                                  
http://www.pta.org/

TECHNOLOGY-RELATED ASSISTANCE                                                                   
Kentucky Assistive Technology Service (KATS) Network
Web: www.katsnet.org

Communication Aid Manufacturers Association                                                    
http://www.aacproducts.org/                      
To request a free packet of catalogs:
http://www.aacproducts.org/free.lasso

Easter Seals Kentucky                                                                                                  
www.cardinalhill.org

Kentucky Disabilities Coalition
www.geocities.com/kydisabilitiescoalition

TASH is an international association of people with disabilities, their family members, other advocates, and professionals fighting for a society in which inclusion of all people in all aspects of society is the norm.

Kentucky TASH Chapter Contacts :
Carolyn Bardwell-Wheeler
Chapter Contact
Lexington, KY
cawjtwmom@aol.com
Leslie M. Lederer
Chapter President
Louisville, KY
Zrah5@aol.com
Sandra A. Mlinarcik
Chapter Contact
Louisville, KY 
smlinarc@sevencounties.org

Foster and Adoptive Parent Support Network
Training Resource Center
Murray State University 
http://ceao.murraystate.edu/trc/trc.htm 

Children with Emotional, Behavioral, and/or Mental Health challenges
KY Partnership for Families and Children
http://kypartnership.org/index.html

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SUPPLEMENTAL SECURITY INCOME (SSI)

Social Security Administration
www.ssa.gov

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TEEN

STATE DIVISION OF VOCATIONAL REHABILITATION
Department of Vocational Rehabilitation
http://www.ihdi.uky.edu/kyada/DVRinfo.htm

KY COLLABORATIVE CENTER FOR

LITERACY DEVELOPMENT

www.kentuckyliteracy.org

DIVISION OF SECONDARY VOCATIONAL EDUCATION
Donnalie Stratton, Program Consultant
Special Vocational Programs
 www.kde.state.ky.us

The Kentucky School for the Blind

(ages preschool to grade 12)

http://www.ksb.k12.ky.us/

KENTUCKY DEPARTMENT OF EDUCATION:
SPECIAL EDUCATION                                                                                              
www.kde.state.ky.us

TECHNOLOGY-RELATED ASSISTANCE                                                                 
Kentucky Assistive Technology Service (KATS) Network
www.katsnet.org

Disability Central

Check out their on-line magazine for teens by teens:

DC @ctive Teen

www.disabilitycentral.com

 

Kentucky Cares

http://kycares.ky.gov/

 

NICHCY (The National Information Center
for Children and Youth with Disabilities)
www.nichcy.org

 

Office of Special Education & Rehabilitative Services

www.ed.gov.offices/OSERS

 

Office of Special Education Programs

www.ed.gov/offices/OSERS/OSEP/index.html

 

Social Security Administration

www.ssa.gov

 

ERIC (Clearinghouse on Disabilities and Gifted Education

http://ericec.org/

 

Rehabilitation Research & Training Center on Workplace Supports

http://www.worksupport.com

 

Research Information on Independent Living (RIIL)

http://www.lsi.ukans.edu/rtcil/apps/riil/search.asp

 

Independent Living: disability resources & services

http://www.independantliving.org

 

Center for Accessible Living:
http://www.calky.org/
 

Supported Living in Kentucky
University of Kentucky

http://dmhmrs.chr.state.ky.us/mr/supportedliving/

 Contacts (Directory page 10), Supports that can  be Requested , Description of  Supported Living , Submitting your  ApplicationApplication , Completing your  Application , Application Review  and Funding Process , Regulations , Eligibility for  Supported Living 

 

Supports for Community Living (SCL Waiver)

Field Staff and Locations (Directory),

Services, RegulationsFormsProviders

 

National Center for Learning Disabilities has included web sites for teens with learning disabilities, “LD News:  News You Can Use.”   To subscribe to their newsletter click: “LD News:  News You Can Use.”

 

The National Collaborative on Workforce and Disability for Youth (NCWD/Youth)

GEDonline is the first continuing adult education website dedicated to helping you prepare online for the GED High School Equivalency Diploma Test.

Search for  Career Colleges
http://www.search4careercolleges.com/default.asp

Free College Search and Scholarship Search
http://www.fastweb.com/

Center for Self-Determination
http://www.self-determination.com/

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TRAUMA

American Trauma Society
www.amtrauma.org

Brain Injury Association
www.biausa.org

National Spinal Cord Injury Association
www.spinalcord.org

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U.S. DEPARTMENT of EDUCATION

U.S. Department of Education

www.ed.gov

 

Office of Special Education & Rehabilitative Services/
Office of Special Education Programs

http://www.ed.gov/about/offices/list/osers/osep/index.html?src=mr

 

Federal Resource Center for Special Education

www.dssc.org/frc

 

U.S. Department of Education, Office for Civil Rights
Web:
http://www.ed.gov/about/offices/list/ocr/index.html
 

NICHCY (The National Information Center
for Children and Youth with Disabilities)
www.nichcy.org

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ZERO TO THREE - EARLY CHILDHOOD

First Steps: Kentucky’s

Early intervention System (ages 0-3)
http://chs.ky.gov/commissionkids/firststeps/

 

ZERO TO THREE: National Center for Infants, Toddlers and Families

www.zerotothree.org

 

KY COLLABORATIVE CENTER FOR LITERACY DEVELOPMENT

www.kentuckyliteracy.org

National Early Childhood Technical Assistance System (NECTAS)
http://www.nectac.org/

Early Head Start/Head Start:
Early Head Start National Resource Center
http://www.zerotothree.org/
(Early Head Start Program Locator:
http://www.ehsnrc.org/ProgramLocator/ehssites.cfm
)

Teaching Strategies Online: Early Childhood Education & The Creative Curriculum http://www.teachingstrategies.com

American Academy of Pediatrics
http://www.aap.org

Speech/Hearing/Language Concerns:
American Speech-Language-Hearing Association Helpline
http://www.asha.org/default.htm

Early Hearing Detection and Intervention:
National Center for Hearing Assessment and Management
Utah State University
http://www.infanthearing.org/

PROGRAMS FOR CHILDREN WITH DISABILITIES:
AGES 3 THROUGH 5                                                                                           
Office of Learning Program Development
Web: www.kde.state.ky.us

PROGRAMS FOR INFANTS AND TODDLERS WITH DISABILITIES:
AGES BIRTH THROUGH 2 
Infant and Toddler Program
Department of Mental Health & Mental Retardation Services
http://mhmr.chs.ky.gov/MR/

The Kentucky School for the Deaf: Early

Childhood Program (ages 0-6)

http://www.ksd.k12.ky.us/

PROGRAMS FOR CHILDREN AND YOUTH
WHO ARE DEAF OR HARD OF HEARING                                                              
www.kcdhh.org

 The Kentucky School for the Blind

(ages preschool through grade 12)

http://www.ksb.k12.ky.us/

Social Security Administration                                                                                     
www.ssa.gov

TECHNOLOGY-RELATED ASSISTANCE                                                                  
Kentucky Assistive Technology Service (KATS) Network
www.katsnet.org

KENTUCKY DEPARTMENT OF EDUCATION:
SPECIAL EDUCATION                                                                                              
www.kde.state.ky.us

Kentucky Cares

www.kycares.com

 

NICHCY (The National Information Center
for Children and Youth with Disabilities)
www.nichcy.org

 

Office of Special Education & Rehabilitative Services

www.ed.gov.offices/OSERS

 

Office of Special Education Programs

www.ed.gov/offices/OSERS/OSEP/index.html

 

ERIC (Clearinghouse on Disabilities and Gifted Education

http://ericec.org/

The Kidz Club is a special and unique place for your medically fragile child.  Our mission is to provide the safest and most inclusive day treatment to infants and children.   Under your pediatrician’s order, your child will receive ongoing medical treatment, assessment/evaluation and supervision by registered and licensed nurses and others.  In coordination with a quality daycare center, your child will be included in a safe, educational and loving childcare experience that allows him or her to socialize and grow with all children.  This early integration speeds up your child’s progress educationally, socially and developmentally.  Your child will not only receive high quality medical care in an educationally enriched environment, he or she will also have FUN!  Medicaid, Passport and Commercial Insurance accepted.                             
Louisville, KY  www.thekidzclub.cc.

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